You may never have heard of Epidermolysis Bullosa (EB), but it’s time that you have. It’s a painful and often fatal rare genetic disease that affects 1 out of every 20,000 births in the US. People born with EB are often called “Butterfly Children” because of their extremely fragile skin.
Next month, the 17th annual debra of America Benefit will take place from 6:30pm to 9:30pm on Monday, November 16th at the Solomon R. Guggenheim Museum in New York City. The evening will include a performance by former American Ballet Theatre Principal Dancer Julie Kent. It will also include a cocktail and hors d’oeuvre reception, a silent auction and a DJ set by platinum-selling singer Kate Nash.
All proceeds from the event will support people living with EB. Learn more and get involved.